PP: Right shoulder, right neck, head, right ear, vasculitis (upper body), right elbow, both wrists, both thumbs, both knees, both feet, inner right thigh, SI joint, tender right abdomen, IBS -D, rough breathing, very dry mouth, dry, irritated eyes, blurry vision, swollen ankles, low fever, insomnia, general anxiety, irritated scalp, under bust rash, very foggy brain,.general full body stiffness, fatigue.
DPR: These last few days have been a blur. Not because they’ve been busy or fun and exciting but because this flare of symptoms is completely out of control. So much so that I considered booking an emergency doctors apt. especially when my lungs joined in. Problem is, in the midst of my brain fog, pain and handling everything going on with Buddy at school I forgot that I actually HAD a doctors apt. that I missed on Friday. I had written it down wrong and even after remembering that, forgot to change it. The soonest they could get me in was next Wednesday. While I am hopeful that by then I am feeling better because feeling this shitty is very hopeless, but with all the blood work they’ll be taking, I’ve always heard it’s good for doctors to take it when you’re at your worst for best accuracy. Lupus blood work can be rather wonky and especially if my organs are inflamed, it would be nice to know as early as possible. In the mean time I’m handling it like a pro….not. I’m miserable, I’m grumpy and I feel very isolated. A lot of coffee, a lot of tea, a lot of water and the maximum I’m willing to go with the pain meds. I feel a migraine coming on this evening so unfortunately I don’t see it getting better in the next couple days. We will see. I can say that I haven’t had a panic attack for two days, that is HUGE. While welcoming back more of the general anxiety is frustrating I would take it in a heartbeat compared to the attacks along with the anxiety of having another attack. I do think this is due to coming off the amitriptyline and will be talking to the doc about other options for migraine, anxiety and nerve pain relief.